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EVENTS

Ongoing: DKA Awareness Campaign

Our mission is to raises awareness about DKA (Diabetic Ketoacidosis) and to promote early detection to prevent fatalities. This is a grass roots effort of sharing DKA information wherever we can. Donations will help drive the campaign to a wider  media exposure. For now our volunteers will manage a DKA Awareness booth at health care conferences at educational institutions and in communities. Our plan is to meet with medical professionals, individuals and their families to provide resources and support.

In 2024, we plan to attend the following events to honor Simon and spread the word on DKA:​

DKA Awareness Event at NC State University (Feb. 29, 2024)

DKA Kills Banner Signing Event at UNCC - March 22, 2024 

7th Annual Conference: Navigating the Journey of Pediatric Diabetes at the William F. Andrews Conference Center in Raleigh(April 12-23, 2024)

 

2nd Annual Simon Hart Memorial Archery Tournament at UNCC (April 13, 2024)

 

Appalachian State University Student Greet (TBD)

 

Appalachian State University Ultimate Frisbee Tournament (Fall)

Movie event at UNCC, NC State, and Appalachian State University (TBD)

 

Meet with Diabetes Educators at the major hospitals: Duke, UNC, Wake, and others (TBD)

 

DKA Golf Tournament (TBD)

UNCC Health Fest - October 2024

DKA Kills Banner Signing Event at UNCC - March 22, 2024

 

The banner signing event is a conclusion to the DKA Kills Presentation we held last year at UNCC on  December 1, 2023.

The Diabetes Link Chapter at UNCC sponsored the event. It was held in the student union where many students stopped by our table, learned about DKA, and signed the banner. We had a great time talking to the students and finished off the evening with a snack at Banh Mi Brothers, which was one of Simon's favorite restaurants.

DKA Awareness Event at NC State University (Feb. 29, 2024)

The event was sponsored by the NC State Chapter of the Diabetes Link

Katerina Slaughter, the President of the NC State Chapter of the Diabetes Link organized the event.

Ted Hart, President of Friends of Simon Hart, told Simon's Story and provided some facts on DKA.

 

Dr. Hillary E. Lockemer, Director of Pediatric Endocrinology at Wake Med Health & Hospitals gave a fantastic presentation on diabetes and DKA.

Thank you Katarina for inviting us to your event!

 

 

 

 

 

 

 

 

 

 

 

In 2023, we had the following events to honor Simon and spread the word on DKA:

Simon Hart Memorial Archery Tournament at UNCC (see photos and videos below)

Celebration of Life for Simon Hart - August 12, 2023 (see photos and videos below)

UNCC HealthFest - October 17,2023 (see photos below)

App State Student Greet - November 6, 2023 (see photos below)

DKA Kills Presentation at UNCC - December 1, 2023 (see photos below)

Katerina nd Dr Lockemere.jpg
DKA Kills Banner Signing 1.jpg
DKA Kills Banner Signing 2.jpg

Simon Hart Memorial Archery Tournament at UNCC

Simon loved archery and was very proficient in it. He was a member of the UNCC Archery club for several years.

To honor Simon, the club decided to have a memorial tournament in his name. The first tournament was held on April 29, 2023. 

We hope to have this event annually. 

 

Sarah Jarrett, the President of the UNCC Archery Club organized the tournament.

The winners for 2023 were:

Michael Matthews (Recurve Bow)

Aidan Giambelluca (Genesis Bow)

Jason Matthews (Compound Bow)

Each winner received a trophy and a silver coin of "The Archer".

Simon Hart Memorial Archery Tournament
Sarah Jarrett Memorial Archery Tournament at Charlotte 2003
Simon Hart Memorial Archery Tournament 2003
Simon Hart Memorial Archery Tournament 2003
Simon Hart Memorial Archery Tournament 2003
Simon Hart Memorial Archery Tournament 2003

Celebration of Life for Simon Hart - August 12, 2023

Kris Ritz, Simon's teacher for 8 years, organized the dedication.

Simon's Story Nook

 

Simon Hart was a student at the Emerson Waldorf School for many years. He was generous, gentle, observant, and interested in the people and world that surrounded him. He loved his family dearly, was friendly to all, gave his best with every try, and enjoyed finding treasures, whether on the playground or in the classroom from the many stories shared.

 

While Simon returned to his heavenly home on September 23, 2022, his love, laughter, and kindness will forever be in our hearts and minds and live upon the earth. As we continue to remember him, we share stories of who he was and who he became on his journey after EWS. He continued to shine his kindness, perseverance, interest, creativity, and wonder-filled Self into his adventures, activities, interactions, and studies. In honor of the incredible human being he was, we dedicate this space to him and welcome you to Simon's Story Nook. 

 

He would have enjoyed this place in the woods, surrounded by nature and limitless possibilities. Feel free to sit awhile and read a book from the Lending Library or share a story about your day with another. 

Thank you for the gift of you, Simon, and for the many stories shared and created. 

We are so grateful to have known you.

Emerson Waldorf Celebration of Life for Simon Hart
Emerson Waldorf Celebration of Life for Simon Hart
Young Simon Hart
Simon Hart Graduates  Emerson Waldorf
Simon Hart Graduates Cedar Ridge High School
Ms. Eve Olive, poet and founder of the Emerson Waldorf School in Chapel Hill NC.

Simon's Family Dedication was given by his Uncle Michael Krupa
 

Thank you all for being here today to take a moment to remember and honor Simon.  I’m Michael Krupa, Simon’s Uncle, and godfather.  I’ll be talking to you today about what Simon accomplished in his life after his time at Emerson.

After his 8th grade here, he went onto Cedar Ridge High School and after graduation he attended UNC Charlotte.  Simon was a very active member of both schools, scholastically, artistically, athletically, and service within the community.

Academically strong, he was chosen to represent his Junior class as an Academic Usher at the Senior Graduation Ceremonies.  He graduated from Cedar Ridge, Suma Cum Laude, a member of the National Honor Society and the Tri-M Music Honor Society. He received honor cords for both his music and his academic excellence.  During high school he supported the local community by volunteering with Habitat for Humanity. He also received a Certificate of Recognition for outstanding performance in videography where he made a short documentary, a music video, a commercial, and a fictional short story.  As well as his honor classes, in his senior year of high school, Simon took Chemistry, Economics, and Psychology at Durham Technical Community College. These classes transferred over to college making him a second semester freshman upon entry.   

Here is what Simon’s high school math teacher had to say about him in his college application which I think sums him up accurately.

 

“Simon is a very bright young man with an exceptional work ethic. He is extremely organized and analytical in everything that he does. Simon is an excellent problem solver and communicates his thoughts and ideas exceedingly well. Simon demonstrates diligence and perseverance when working in math class. He works hard to complete all assignments, including any extra assignments that are given. Simon can work independently or as a member of a group. He is always willing to ask questions as well as help others that do not understand the material. Unlike many students, Simon would spend lunch working on homework not just to get it done, but to make sure he understood it. Simon always wants to be certain he understands the concepts that he is learning. It’s not just about the grade. He appreciates a challenge and works persistently until he understands all facets of the problem. Simon is also a very respectful young man. He is polite to his teachers and his classmates. When putting my students into groups, I could always put Simon with any student, regardless of his or her background, mathematical ability, or gender. He is kind to others and keeps an open mind. I would often see Simon helping another student, explaining a problem or topic. In addition, Simon exhibits integrity and honesty in everything that he does. I know I speak for all of his teachers when I say that Simon is a joy to teach and a pleasure to know.”

 

After high school graduation he attended The University of North Carolina at Charlotte pursuing a degree in Mechanical Engineering with a minor in math.  He mastered math and was asked every semester to be a T A which he politely declined since his class schedule was so heavy.  Every semester found him on the Chancelor’s list for his high academic grades achieving a GPA of 4.0 in a very rigorous field of study.  He was well loved and respected by his fellow classmates and professors.  Because of his dedication to the study of Mechanical Engineering he was invited to be a member of the Tau Beta Pi Honor Society in his sophomore year.  Although his studies were demanding he found the time during the school year to follow a new passion in Archery.  Simon had Allison Eaton as a teacher for several science classes in High School who is a world-champion archer who competed for a spot on the US Olympic Archery team. With Ms. Eaton’s coaching, Simon set his sights on being a world class archer himself. Simon became a member of the Wolf Ridge Archery Club founded by Eaton. In college Simon joined the UNCC Archery Club and passed his knowledge on by coaching his fellow club members.  He was well loved by his fellow archers and at the end of the spring semester we hosted The Simon Hart Memorial Tournament.  In December, because of his high standing within the Engineering department, he was given his degree in Mechanical Engineering.

 

Artistically, he continued playing his tenor saxophone in the High School Concert Band, Jazz Band, and the Marching Band where he became the woodwind captain in his senior year.  He received many awards for his musical ability and was invited to be in the Tri-M Music Honor Society.  He grew as a musician and made many strong friendships.  He was always willing to help wherever needed, at fundraisers manning the concession stands at UNC football and basketball games, performing solos, playing at the annual fundraising dance, at fellow graduation ceremonies, helping setup for concerts, and carrying instruments for fellow band members.  He was a friend to all, and he would always be the last one to leave after assuring everyone left safely.  He was honored at his vigil by a fellow musician who played, “Amazing Grace”, on her saxophone for him.  He inspired his fellow high school band members and they decided to come together and create an alumni band.  They performed at the school’s winter concert this past year and dedicated their performance of David Gillingham’s, “At Morning’s First Light”, with an introduction given by the Music Director to Simon.

His artistic endeavors did not end with his musical talent.  From learning to build fires with a bow drill as “Senior Fuego”, in his younger days, he was to later create things by use of fire through the art of forging.  He was self-taught and started out with primitive tools working his way up to more advanced tools and techniques as his skills improved.  He had a very “make do” attitude and would use what he had or what was readily available.  He loved the idea of taking useless scraps of metal such as railroad spikes, coils, and leaf springs that he found and turning it into something beautiful and useful. He especially loved the step of quenching, which is dipping the finished hot blade into oil to harden it.  It is said that the quench is a very special moment when a bit of steel becomes a useful, functional tool and it is the heart and soul of a blade. Simon loved the process of giving something heart and soul and that moment was very special to him. His metalsmithing skills also included mig and tig welding.  He also loved creating things on his 3D printer.  We miss the sound of his hammer ringing as he shaped hot metal into a form he designed or of his 3D printer whishing back and forth.  We have brought a small sampling of the things he created.

 

Athletically, he was a member of the Varsity Tennis team in High School, and he enjoyed playing with his father every Sunday.  He was the founder and captain of the Cedar Ridge Ultimate Frisbee Team where he enjoyed leading the team in practices.  In the summer he pursued his love of the ocean by being an avid surfer and accepted as a fellow waterman amongst the surfing community.  He loved hiking and particularly loved climbing to the very top of Dragon’s Tooth in Virginia, the many peaks of North Carolina, the Smokey mountains, Yosemite National Park, and other beautiful mountain tops from Maine to Georgia. He loved when it snowed, and skiing was a favorite winter pursuit. 

His sense of adventure was boundless, and he loved traveling and learning about different places and the events that happened there.  A favorite trip was traveling across the country on a train and traveling to New York City with his bandmates.  From the Atlantic and Pacific oceans, the many mountain tops to the depths of Mammoth Caves to the cities of San Francisco, Chicago, St. Louis, Boston, and everything in between he was always up to exploring. He even explored the skies by piloting airplanes and drones.  I’m glad we made the trip to South Carolina for him to see and experience the unforgettable full eclipse of the sun.  No stone was left unturned whether it be land, sea, or sky.

 

His love of treasure hunting was vast.  He had an uncanny talent for finding crystals in our stream.  He liked geo-cashing and created one near our house.  Hunting for treasure evolved to metal detecting, a past time he enjoyed especially on the beach.  His favorite treasure hunting adventure was digging for gold at his Uncle’s stake in the hills of Santa Margarita in California.  When all is said and done though he was the true treasure.

As you can see, Simon worked hard and played harder.  He enjoyed the simple things in life and although he loved traveling he especially enjoyed being at home and spending time with us.  He especially loved spending time with his best friend and sister and their adventures together.  A highlight was co-starring in a locally produced horror movie called, “The Welder” with her.  Even during long, cold nights of shooting he always stayed positive.  He never wasted a moment to learn or do something and packed so much into the time he had with us. He cared for others and never said a bad word about anyone. He was easy to be with, someone that people counted on, was there for people during their rough patches, and he had a great sense of humor. 

We miss him greatly and it’s devastating when parents lose a child, and a sister loses her best friend and brother. It’s beyond any pain you could ever experience in your life.  It’s life changing and its heart wrenching.

 

Simon died from Diabetic Keto-acidosis (DKA). We didn’t know anything about DKA. But now that we do, we want to spread the word about DKA so that it might help save another life. There are 8.5 million people that do not know they have diabetes. DKA lays in wait and strikes quickly.  A simple test at home can detect it.

To help families avoid this tragedy, we created a non-profit organization for Simon called “Friends of Simon Hart” to spread awareness of DKA so no other family has to experience the tragedy that we experienced. A website is being created for the non-profit that will be ready in a few weeks. The website will contain Simon’s story, information about DKA, and stories of others who have lost family members to DKA, and a donation page. 

 

Most importantly please spread the word on DKA!

 

Thank you.

UNCC Health-Fest - October 17,2023
Jada Sanchez, President of Diabetes Link UNCC Chapter invited the Friends of Simon Hart to participate in the 2023 UNCC Health-Fest. We spoke to over 150 students about diabetes and DKA. We gave out pens, sunglasses, a DKA Signs and Symptoms card, car stickers and much more.
Simon's sister Allegra Hart and Simon's cousin Audrey Krupa, helped with the setup and giveaways.
 Thank you Jada and the Link members for a wonderful and educational day!




 

App State Student Greet - November 6, 2023 

Thomas Dwindell, President of Diabetes Link App State Chapter invited the Friends of Simon Hart to participate in a meet and greet with App State students at the Student Center. It was terrific to meet the students and talk about diabetes and DKA.  We gave out pens, sunglasses, writs bands, a DKA Signs and Symptoms card, car stickers and much more. Simon's mom helped with the setup and giveaways. Thank you Thomas for a wonderful and educational day!

DKA Kills Presentation at UNCC - December 1, 2023

Jada Sanchez, President of Diabetes Link, UNCC Chapter invited the Friends of Simon Hart to participate in DKA Kills presentation at UNCC. Jada talked about diabetes and Ted Hart gave a slideshow presentation on DKA and Simon's story. The UNCC Diabetes Link members created a DKA Kills poster to have students sign the poster confirming they are DKA knowledgeable. It was a great evening!  Simon's mom helped with the arrangement.  Thank you Jada and the Link members for a wonderful and educational evening!

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